Versus Arthritis is now Arthritis UK
From Debroah: This is just a quick email to let you know that Versus Arthritis has changed its name to Arthritis UK. The decision to change our name and brand
Advancing Research Patient Centric
Advancing research through less bureaucracy. When implemented together, with strong commitment across the ecosystem, updated recommendations to reduce admin burdens in clinical trials will: ✅ Ease pressure on investigators. ✅
Interesting Project: FACILITATE
FACILITATE is a four-year European project focussingon the responsible use of clinical research data.The aim of this patient-centred project is to ensure that all citizens participating in a clinical trial
2 Abstracts with Patient Focus accepted at EULAR2025
2 abstracts out of NetwOArk have been accepted for the EULAR congress 2025 PC abstract EULAR 2025 eular25-D149-abstract
Update on Publications 1st Q 2025
Some new publication out of NetwOArk 2025_Gijon-Nogueron_Terminology and definitions in OA PC abstract EULAR 2025 eular25-D149-abstract
Patient Engagement in Research
Patient Engagement in Research: More Than A Box to Check Presenters: Linda Li, PhD, Arthritis Research Canada, Vancouver, Canada Jackie Whittaker, PT, PhD, The University of British Columbia, Vancouver, Canada
New clinical trial map launched in the EU
Dear patients’, consumers’ and healthcare professionals’ organisations, We are pleased to announce that a new clinical trial map is accessible from the public website of the Clinical Trials Information System (CTIS).
Patient-Reported Indicator Surveys (PaRIS)
The Patient-Reported Indicator Surveys (PaRIS) is an initiative of the OECD where countries work together on developing, standardising and implementing a new generation of indicators that measure the outcomes and experiences of