Update on Helsinki declaration for clinical trials involving humans
Update here: https://jamanetwork.com/journals/jama/fullarticle/2825290?guestAccessKey=51072d5e-65f9-4d00-9bf0-e2e90e163234&utm_source=silverchair&utm_medium=email&utm_campaign=article_alert-jama&utm_content=olf&utm_term=101924&adv=000004551719 Special remark on patients view: (Citation) The latest revision1 introduces important updates that align with modern scientific advances and the evolving societal understanding of patient rights. For example,
Publication on pain and pain medication in Ireland
netwOArk member Helen French et al. have published and analysis of pain. pain subgroups and pain medication use in a cohort in Ireland: https://pubmed.ncbi.nlm.nih.gov/39358713/ This study found that medication use
2024: EULAR recommendations for patient research partners
EULAR recommendations for the involvement ofpatient research partners in rheumatology research:2023 update published: 2024 EULAR recommendations for involvement of patients
World Patients Day 2024
WHO has announced the Patients Day 2024 https://www.who.int/news-room/events/detail/2024/09/17/default-calendar/world-patient-safety-day-17-september-2024-improving-diagnosis-for-patient-safety announcing-world-patient-safety-day-2024_english
EU-NetwOArk Patient Council founded!
Article PC NetwOArk english Article PC NetwOArk fr francais Article PC NetwOArk es espanol Artikel PC NetwOArk de deutsch Article PC NetwOArk tr turkish Article PC NetwOArk sv swedish Article
Patient Safety Documents
Patient safety and involvement: Relevant documents Some documents concerning patient safety and patient engagement Patient Safety Report 2024 Charter of Patient Safety Ritghts_WHO-eng B0435-framework-for-involving-patients-in-patient-safety
1st Patient Council/Foundation Meeting held in Umhausen
The first Patient dedicated meeting for the foundation of the Patient Council was held in Umhausen/Austria June 13 to June 16, 2024 Patient organisations and individual patients were invited and